So it’s time…
Posted December 28, 2011on:
…for me to start this back up again. I wish it was because I’m all happy and cheery and want to share the goodness, but, alas…no. I am writing again in the aftermath of a series of medical traumas that my husband has gone through, and the resulting way that our lives have changed. I’m just going to be jumping in with both feet here. The writing is for me. I don’t expect anyone else to read it or understand it, but little by little I imagine the whole story will be told.
Jackass had a series of grand mal seizures, from August to mid-November, and after 3 months of tests was diagnosed with a fistula in his brain. It has a real name, which I don’t want to write down, lest a google search should lead someone back here. Like I said, this writing is for me, and I need it to stay that way.
Anyway, the fistula caused irritation in the brain, which set off the seizures, which inevitably left him with some damage. Speech issues, cognitive issues, memory lapses. Physically, he’s the same. The fistula was embolized – twice. And the doctors think that within three months the swelling will be reduced and the problems he is having will right themselves. I am less certain.
He has good days and bad. Today, not so good. He woke up belligerent and frustrated, and has argued with me over everything. How much water to put in the coffee pot, whether or not to put the Christmas tree lights on…just stupid stuff because that is the focus of his days. Gone is the intelligent, driven professional, and in his place is this man who is withdrawn, depressed and probably terrified. He is not alone.
I’ve been on family leave since December 1st, but that ends in a week and a half. Going back to work full-time on January 9 and I’m not sure how we will manage. But I have to go back at some point, and I don’t see things changing dramatically from one week to the next.
So that’s that. The whole story needs telling, but I’m not there yet. But I feel better already having written that much of it down.